Parents of Children with Autism: An Ethnography by Juliette de Wolfe

Parents of Children with Autism: An Ethnography by Juliette de Wolfe

By Juliette de Wolfe

In a readable and hugely obtainable ethnographic account that's formed through the tales of households and the voices of folks, De Wolfe examines how mom and dad of kids with autism navigate the tutorial and clinical platforms, comprehend their very own and their kid's our bodies, and help and train each other.

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Sample text

After she became a member, she was eager to join the leadership team and quickly took on responsibilities related to meeting announcement and online activism. Since its establishment in 2006, APSG has gone through many changes. Parents have come and gone, sometimes realizing that they could not dedicate enough time to the group, sometimes having to move away for professional or personal reasons. Since Leslie (described in the opening) became the secretary a few years ago, the leadership team has stayed constant, but even so, sometimes there were disagreements among the four mothers that required a reworking of delegated duties, or discussions about how to divide up the work of running the organization.

26 Pa r e n t s o f C h i l d r e n w i t h A u t i s m Thread Three: The Temporality of Experience The book strives to describe the dynamic nature of how participants are variously identified, situationally and temporally. Ethnographies sometimes portray a snapshot of participants’ lives without suggestion and analysis of ongoing change. Presenting human activity in this way can create a sense of stasis, allowing the reader to believe that participants’ lives will remain as they are presented in the text, forever.

In this chapter I focus on individuals like Leslie. I introduce several of the autism parents with whom I became acquainted and discuss how they differ from other autism parents locally, as well as how they differ within the support group through which they are all connected. I pay close attention to parents as individuals and parents as members of a group, APSG. The individual parents may have had fundamentally different experiences if they were not members of APSG. Likewise, APSG would likely operate in a different way if a particular individual, Sarah, had not founded it, or if the individual members of the group were replaced with different parents.

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